Making the Pitch

We know Parkinson SuperWalk and the work that Parkinson Society does are important to you and we thank you for your commitment to our shared vision. The following information is designed to help you communicate that with others. This background on Parkinson’s, Parkinson Society, and Parkinson SuperWalk is shared for your own information and to help as part of your conversations around asking people to join your team or to make a donation.

Parkinson SuperWalk

  • This nationwide event is Parkinson Society’s largest annual fundraiser and awareness event. Over 14,000 people in more than 110 communities from British Columbia to Newfoundland get involved each year.
  • More than just a fundraiser, Parkinson SuperWalk is an event designed to bring people living with Parkinson’s and those who care about them together. To show people who can feel isolated and concerned about the future that they are not alone in their goal to live well with Parkinson’s.

Parkinson ’s disease

  • Parkinson’s is a neurodegenerative disease that affects approximately 100,000 Canadians and their 400,000 family members, loved ones and carepartners. 
  • The number of Canadians over 40, living with Parkinson’s disease, will increase by 65 per cent, from 99,000 in 2016 to 163,700 by 2031.
  • By 2031 the number of Canadians over 65 living with Parkinson’s disease, will more than double to 148,800
    • The significant growth in the Parkinson population in the coming years means that funding for research is vital, to ensure better treatments for those diagnosed and ultimately a future without Parkinson’s. Further, it means support services, education and advocacy provided by the Parkinson Society will see greater demand in the years ahead. That’s why your support is necessary.
  • Movement is normally controlled by dopamine, which is a chemical that carries signals between the nerves in the brain. When cells that produce dopamine die, the symptoms of Parkinson’s appear, which can include a resting tremor, difficulty with fine movement, balance and walking, slowness and muscle stiffness, loss of volume and clarity of speech and handwriting, among other concerns.
  • Although Parkinson’s is known as a movement disorder, in reality it affects all aspects of life, including one’s ability to eat, sleep, walk, talk, think, and reason. In addition to the change in motor skills are the non-motor symptoms, including changes in mental health, such as depression, dementia, sleep disorders, and impulsive behaviour. Parkinson’s changes everything from finances to relationships. It changes lives.

Parkinson Society: Research

  • Parkinson Society provides funding for Canadian researchers through its National Research Program. This research is investigator driven discovery research and is peer reviewed by a team of scientific advisors ensuring that research funds are designated to only the best rated projects.
  • By not targeting specific areas of research, this funding methodology allows researchers to be creative and try novel ideas, an approach that promotes discovery and breakthroughs.
  • By promoting research into novel ideas PSC supports new ideas that otherwise may not be investigated. Providing an opportunity to explore these new concepts and develop the data required to support their ideas PSC provides researchers an opportunity to get the process started for new and exciting research. From there, they are able to leverage PSC’s funding into additional support for their research projects. For example, Dr. Connie Marras was able to turn a $45,000 Parkinson Society Grant into $2,000,000 in new grant monies from findings as part of her 2011-2013 funded grant.

Parkinson Society: Research Examples

  • In 2013 Dr. Marc Ekker’s lab was able to produce zebrafish in which they could selectively kill the dopaminergic neurons. They are now in the position to examine the possible regeneration of these neurons. Understanding how zebrafish regenerate dopaminergic neurons should be instrumental in the development of methods to stimulate the regeneration of such neurons in PD patients.
  • In 2014, Dr. Jacques Drouin discovered a mechanism regulating dopamine levels in the brain. His research discovered that a defect in a specific gene can lead to cell death in dopaminergic neurons, suggesting that this gene could be a new target for the development of drugs to treat Parkinson’s.

“Our research puts disease management in the hands of patients. Non-motor symptoms affect quality of life, including depression, loss of sense of smell, sleep disturbances and changes in thinking ability. There have been a lot of little successes, including treatment of depression, and other non-motor symptoms. By funding these types of research, Parkinson Society Canada is leading the way in connecting all the pieces, motor, non-motor and psychosocial, to better understand (and treat) Parkinson’s.

- Dr. Ron Postuma, Psychosocial Research Grant Recipient 2009-2011


Parkinson Society: Support, Education and Advocacy

  • Through our education and awareness programs, we help to build a better understanding of Parkinson’s disease and improve the quality of care.
  • Healthcare professional outreach, including the ‘Get it on time’ campaign, and the ‘Parkinson Education Program’ takes place across the country to help educate staff working in hospitals and long term care about the individual nature of Parkinson’s and the importance of providing custom care, including adherence to individual medication regimens. These programs compliment the Canadian Guidelines on Parkinson’s Disease the first of their kind developed to guide medical professionals in care of patients with Parkinson’s.
  • Parkinson Society staffs information and referral lines, accessible to anyone, anywhere in Canada. An important compliment to treatment by a movement disorder specialist or neurologist, our information and referral lines provide connections to important community resources, access to information and resources in response to specific questions, and more than that they provide support. From the moment anyone, anywhere is diagnosed Parkinson Society is there as a supportive voice and a partner in good health.
  • Our network of passionate volunteers and facilitators help to provide support in the communities where people live through Parkinson Society Chapters and Support Groups. With over 250 available across the country, needed local support, education, and information is available to anyone in Canada living with Parkinson’s.


“Upon diagnosis I was welcomed into a new world - the Parkinson Community. And what a Community it is! The symbiotic relationships between Parkinson Society CNO, its support groups, and their members represents a true community. For I know full well that whatever I experience, the CNO family will be right behind me with all the support and help they can muster... it is so reassuring to know that they are there.”

- Heather Sinclair, Port Hope