Diana tells you about a typical day with Parkinson's
Parkinson’s is a progressive disorder of the central nervous system that may lead to tremors, rigidity, slowness of movement, gait disorder and a loss of balance.
Saturday September 9th is Parkinson SuperWalk in Ottawa, Parkinson Canada’s annual national event to raise funds for research, for better treatments, and hopefully down the road, a cure. My family will once again be taking part.
Funds raised will also help with education and support services for people with Parkinson’s and their caregivers.
Here is what my daughter Diana Rachlis has to say to you:
I have had Parkinson’s and dystonia for almost nine years. I am also celiac. Here is a typical day for me:
Within 15 minutes, my toes on both feet curl under, all the way under. OMG it hurts. Then my feet cramp, twist and go on their side. If I needed to go anywhere, I’d use my wheelchair. I have a travel wheelchair that folds up and we take it on outings in case.
I do my meditation and breathing. My good friend and yoga therapist Eric Peters has been teaching me breathing techniques and how to do my best to relax. With very, very, painful foot cramping, you don’t know how long it will last or if it won’t end at all. The dystonia cramping can happen up to several times a day.
7 a.m. I begin taking my pills which I take every three hours throughout the day, and once during the night. My first medication is Levodopa for Parkinson’s.
8 a.m. I take pills for stomach acid, vitamin B12 and iron supplement, and magnesium.
When the dystonia stops in the morning, I go to my Y gym across the street at Carlingwood. I do weights three times a week, and a 30-minute walk or stationary bike when I can.
10 a.m. I take my second Levodopa, my first calcium pill and Rocaltrol which helps bones absorb calcium, and the first of three anti-nausea pills.
1 p.m. Another Levodopa.
4 p.m. Another Levodopa, and another calcium and Rocaltrol.
7 p.m. My antidepressant pill, and anti-anxiety pill if needed.
10 p.m. My last Levodopa of the day.
Bedtime. Some days I need a nap, some days I don’t.
I encourage you to donate so that a cure can be found for Parkinson’s. Nobody should have to go through this. With research we will find a cure, and your donations also help fund support groups and other resources for Parkinson’s sufferers.
If you have any questions, please contact Parkinson Canada.
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