Welcome to My Personal Page
I'm having a relatively good day today so I thought I'd make an effort to update my personal page on the Parkinson Superwalk website. A good day probably means something completely different to most of you who are reading this. In my pre-Parkinsons life it meant a day spent with family or friends, usually enjoying something outdoors like skiing, biking or any number of similar things. Nowadays a good day means a day that I can start off not feeling trapped in my own bed like a turtle on its back, willing my body to move despite the resistance of my brain not wanting to talk to my body. It means a day that I can prepare a meal for myself or my family without my hands cramping up into claws. It means a day where my walking is more than a shuffling of my feet with my left arm tucked into my body like a bird with a broken wing. Unfortunately, my bad days are becoming more frequent. That's why I'm actively seeking a treatment called deep brain stimulation (DBS, brain surgery) to provide relief from some of my symptoms.
As I've said many times in the past, I'm not sharing my situation to elicit sympathy. As part of my role as the president of the PEI chapter of Parkinson Canada I feel an obligation to share my story to educate others about what Parkinsons looks like. I'm often told by others that I'm looking well. It is likely true that in that moment, I do look well. But that is because most people only see me at my best and not my worst. Furthermore, I still regard myself as being on the good side of the spectrum of symptoms that come with Parkinsons. I'm speaking for those who literally can't speak for themselves because Parkinsons has robbed them of their voice or their ability to be out in society due to extreme mobility issues. In truth, I still have plenty to be thankful for. In a weird way PD has granted me a great perspective on appreciation. Who knew that I would feel a sense of accomplishment in completing so many daily tasks that I never gave a second thought to in the past. While I always appreciated my friends and family, that feeling is keener now. Michael J. Fox once described Parkinsons as 'the gift that keeps on taking'. I'm going to wrap things up. What started as a freely moving two-handed task has devolved into a one-handed effort of hunt and peck as my meds are wearing off.
I'm asking for your help, again, for myself and many others with Parkinsons disease and the many more who will be diagnosed in the future. I'm optimistic about the chances of finding a cure for all of us.
This September I will join 14,000 Canadians who take part in the Parkinson SuperWalk. Together we raise funds for education and support services, not only for people with Parkinson's, but also for their caregivers and family members too in communities across Canada. This annual event also raises funds for research into the causes of Parkinson's, better treatments and one day, a cure. When you walk with me or sponsor me, you bring us closer to this year's goal. Every dollar means new hope. Thank you!
If you have any questions, please contact Parkinson Canada.
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