Support [NAME] for Parkinson SuperWalk
Living with a disease like Parkinsons is no easy task, and I mean that for both the person with the disease as well as his or her loved ones. It has been almost ten years now since I was told that I had a degenerative neurological disease for which there is no cure, and there is still no cure. Since that time I've lost a lot to the disease. I no longer have the freedom of movement that once allowed me to carry my boy on my shoulders to the grocery store a few blocks away, or enjoy bike rides to work or with friends. I love to cook, but, no longer was I able to prepare a simple family meal without expecting some combination of back pain, cramping and contortion in my hands and feet, or fatigue so overwhelming that I would have to rest before completing the task. Eventually I was no longer the gainfully employed major provider for my family. My disease had now taken from me the job that I was good at and that I loved.
My story isn't uncommon among Parkinsons sufferers, and it isn't even close to the saddest stories I have heard from many of the people I've come to know and care for in the Parkinsons community. No two people living with the disease share the same combination of symptoms, but what seems common among most of us is a significant withdrawal from society. Whether it is embarrassment of being seen with the typical symptoms of stooped posture, slow movement or evident tremors or whether it is simply the fatigue that many feel when engaging with others, the result is the same.
I've had to reinvent myself many times over the past ten years. I've given up things I can't do anymore and discovered or rediscovered things that I can do. Still, it is difficult to engage socially.
So that brings me to the story that I really want to tell, and a challenge I want to issue to all of you who are reading this. Despite a significant personal downturn in my life, I finally accepted the invitation of some true friends who never gave up on me. The invitation was to join them at a weekly trivia night (shout out to Barry at the PEI Brewing Company). The host, Barry, would give an extra point to teams willing to sing parts of any TV theme song. On one of these nights, despite full blown tremors visible to everyone, I decided to sing. I used to love to sing.
If you haven't viewed the video of me at trivia night, please take a second to check it out. It is attached at the top of this profile page.
It felt great. In that moment I realized I had reclaimed a part of myself that I had missed without knowing it was missing. As I was leaving, a young man asked to speak to me about his grandmother who had Parkinsons but who had passed away. I came away thinking that I wanted more conversations like that and I wanted others to share the feeling that I just felt, in public, enjoying social time with friends… with Parkinsons.
So my challenge is this…
If you or someone you love has Parkinsons, push yourself to get out there. Push through the fatigue or apathy you might be feeling and get out there with friends. Push yourself to find something new if you can't do all of the things you used to do. If you are reading this and you are in good health, celebrate that and push yourself to do the thing you've always wanted to do. Because, if you haven't been paying attention, that opportunity might be gone someday. If you can, document your transformation and encourage others to push themselves too. If you have a Facebook account or other means of sharing my message, include my Superwalk profile link, post a message or video of you pushing yourself and ask at least 2 other friends to do the same. Lastly, if you would like to make a donation to my Parkinsons Superwalk campaign, I would greatly appreciate it. Together we will find a cure.
Remember, Push it for Parkinsons
PEI Chapter, Parkinson Canada
More than 25 Canadians are diagnosed with Parkinson's every day; more than one person every hour. By 2031, the number of people living with Parkinson’s in Canada will more than double. I am participating in SuperWalk to fund the increasing need for support, advocacy and research.
Your donation fuels better health outcomes for Canadians living with Parkinson's today, and it supports the Parkinson Canada Research Program which works with Canada's brightest researchers to find the next big breakthroughs in treatment. This is why I'm asking for your support today.
Help me ensure Parkinson Canada is there for Canadians living with Parkinson’s today – while funding research into better treatments and one day, a cure.
To show your support, click the DONATE NOW button on the right hand side of the page, above the progress meter and achievements.
Every dollar means new hope. Thank you!
Your gift shows support for the Parkinson Community. It shows them that no matter how things change and no matter what days may bring there is strength in numbers. With unwavering spirits - letting no obstacle hold us back. No matter what.
If you have any questions, please contact Parkinson Canada.
If you think this page contains objectionable content, please inform the system administrator.
© Parkinson Canada
4211 Yonge Street
Toronto ON M2P 2A9
Charitable Registration Number 10809 1786 RR0001
Toll Free: 1-800-565-3000
Parkinson Canada is accredited by Imagine Canada's Standards program, recognizing a quality of excellence in five fundamental areas: board governance, financial accountability and transparency, fundraising, staff management, and volunteer involvement.