Please support Janice English as she participates in the Parkinson SuperWalk on September 7, 2019
No matter what, I will try and keep a positive attitude and sense of humour, as I live each day with this disease that challenges every inch of my body.
No matter that I lost my balance three times recently in public washrooms. I am beyond grateful that each time I fell, I didn’t need to be rescued by anybody. I can only imagine the horror of a room full of firefighters pulling me out of a small space between the wall and the toilet. Once I got over the shock, I could laugh about it .
Mind you, when It happened at the first stop we made on the way to Prince Edward Island, it almost made me turn around and go back home!
No matter how many times I have to ask my husband to help me, he always does it willingly. With him by my side, I know that I am not fighting this disease by myself. He is learning how to do all sorts of things that he now has to do since I can no longer manage to do them. Our golden years will not be what many have, however our days have lots of laughter in them.... it is much easier to cope when you put a positive spin on it and can share laughter over the small things.
No matter what, for as long as I can,
I will be out walking daily, trying to keep my body moving, despite it having other plans. I am lucky to have wonderful family, friends and neighbours who keep an eye on me and rescue me when needed.
No matter what I appreciate every little thing that my son does to help us, and teasing ....... try and keep my sense of humour even if I don’t feel like it.
Just having him hold his arm out automatically for me, if I don’t have a walker handy at the time, means more than he ever will know.
Each time he is visiting us he hears my alarm go off stating that I need meds and he automatically says "I’ll get them mum ... you stay there."
No matter how hard my struggle is each day I appreciate everyone who stops to chat when it is obvious I am really struggling to even move an inch and tells me how I inspire them....because at the time that’s not how I feel at all.
Just knowing that gives me strength to keep on fighting.
No matter what, despite how much pain I may be experiencing and how much rigidity I have at the time, I will always be grateful for all the dogs in our neighbourhood who make me smile. As they wag their tails and pull their owner towards us always melts my heart and makes me forget the pain and the hard time I am having. They are just so loving and cute
No matter what .... Parkinsons disease has taken away from my abilities this past year, it is also giving me gifts.
So many people so much younger than me have been dealing with disability challenges all their lives ....not complaining, and getting on with life.
I have always felt empathetic towards people, but I never knew until I got Parkinson's just how much this disease affects our activities of daily living.
I would not wish Parkinson’s disease on my worst enemy.
Without all the support of the scientific and medical research, we would not be where we are today.
It takes a lot of money from a lot of people and many years to find cures for diseases like Parkinson’s. Every part of your body is affected when you get Parkinsons. When I first wake up in the morning before I try and move, I sometimes forget I have it and then it doesn’t take long to realize that I do. I can barely get from my bed to my dresser and it’s only about four steps. On those days I wonder what’s ahead for me and for my family.
This is just a glimpse of what life is like when you have this disease.
P.D. is one of the fastest growing diseases out there.
Please consider donating and be reassured that I and all the other patients who suffer from this disease, face every day. Know that your dollars are so greatly appreciated and give us hope. The walk is soon here.
This year I am hoping to do the walk myself. Although I walk every day they are walks when I’m able to move ....at times my body is cooperating . This walk will be at a set time when my body may not want to move or be able to walk. That in itself will be a challenge.
However with my husband, son, family members and friends and hopefully some of my furry friends at my side,we will bring enough smiles and laughter as we walk together and raise money to find a cure for Parkinson’s disease.
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